How Histaminosis changed my life

by Livvux

Histaminosis is a kind of intolerance against histamine. The special thing about it is that the human body itself produces histamine. Since 2011 I’m suffering of histaminosis, which changed my life forever. In this blog article I try to explain what my health issues are and how it all started and how I try to live with the symptoms I have.

Daily cramps and stomach pain

My biggest symptom, probably coming from the histaminosis (as my doctor said): The stomach pain, cramps and bloatings. Everyday my stomach is literally ‘killing’ me. It’s really hard for me to be in public places like restaurants, cinemas or anywhere else. This makes my public life really hard. I tried many different medications but nothing helped.

Whenever I eat or drink, or I don’t, my stomach bloats and I feel knocked out. This influences my life in many ways, going out is nearly impossible for me.

How it started: Breathing issues and swollen eyes

It started back in 2011 with swollen eyes and problems in my breathing. I couldn’t breathe well anymore, it was really hard and it hurt. I felt dizzy, couldn’t get enough air and collapsed. I went to the hospital and some doctors. I was then diagnosed with allergic asthma, but the reason behind it, no doctor tried to find out. I was on my own. My eyes were swollen, red and they hurt a lot – my sister took me to an eye doctor that had emergency time on a weekend. This doctor (an older woman) checked my eyes and diagnosed me with ‘Adeno virus’. This was a wrong diagnose, later proved, because I still had the symptoms 2 weeks later after treatment.

Well, some time later a doctor gave me ‘antihistamine pills’ because my issues were very strong in pre-summer and summer. So, they gave me those pills without explaining how they work or what I have. But they helped. This was the first moment I heard about histamine and so I googled what it is.

Histamine is an organic nitrogenous compound involved in local immune responses, as well as regulating physiological function in the gut and acting as a neurotransmitter for the brain, spinal cord, and uterus.[3][4] Histamine is involved in the inflammatory response and has a central role as a mediator of itching.[5] As part of an immune response to foreign pathogens, histamine is produced by basophils and by mast cells found in nearby connective tissues. Histamine increases the permeability of the capillaries to white blood cells and some proteins, to allow them to engage pathogens in the infected tissues.[6]


How I try to live with it

For me, times were really hard, and they still are. It’s a hard thing when your own body fights against you, and you can’t do many things except eating antihistamine pills. Whenever I have symptoms of breathing, skin problems and swollen eyes, I can take the pills. But against my stomach pain and bloatings I never found solutions. I tried to eat different stuff, drank only water, dropped food with histamine from my daily food, but nothing really helped. Even stress can cause histamine to be produced.

I have never thought that my stomach problems are in connection with the histamine – but so said my doctor. I went through many diagnoses (many wrong ones), weird words from doctors, and many didn’t take my problems for serious. Some doctors didn’t even look at me and just asked me general questions. I felt left behind in this situation and I lost any hope for this situation. Well, this sickness is hard, and everyone with the same sort of issues can relate. I’ve spoke to some people that have histaminosis. Most of them are older women (40+), who have it, according studies.

Allergies that technically aren’t allergies

On a histaminosis, your body is tricked to think there is an allergy in your body and tries to fight it. You get symptoms like

  • Swollen eyes
  • Itchy skin
  • Stomach pain and bloatings
  • Body sweat
  • Breathing issues like asthma

And often, those symptoms lead to wrong diagnoses, because those can also be symptoms for a ‘real allergy’, while the symptoms of an histaminosis are the same.

Psyche and depression

The psyche suffers a lot. If you have daily cramps, cannot go out by your own for hours, have to watch what you eat and drink, it gives you an immersive amount of stress. I felt left behind, many times. There were moments I’ve not been sad anymore, just empty and didn’t know what to do. I was young, in my early ages, discovered how it is to go out, but I couldn’t. It threw me into emptiness and questioning “Why do I have this?” and it still does, sometimes. If you are reading this and can relate, type and comment here and let me know. Maybe you experienced other things, or even the same.

The future: It’s still in scientific researches

The topic ‘Histamine’ is still in early-ages of researches. Studies say only 1% of humans have the histamine-intolerance, mostly elder women. Doctors think the menopause can be a reason to cause an histaminose, because it changes the hormone balance. So we will wait and hope that science will find out more about it.

My wish: Make this topic more public. Give it more attention. Speak about your symptoms, health, how you feel and why. This topic deserves more attention. It is a rare thing (no question), but I – and many others – suffer because of it. We need to find solutions and talk about these issues, people suffering from histaminosis, have.

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